March 2009

We’ve been getting our Ellie’s nursery ready while she’s getting strong enough to come home.  I wanted to sho you some pictures because right now I’m all about our baby…But first, here are some pics of Baby Elliot and her little IV arm  and her feeding tube. We sure hope and pray she gets the [...]

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It’s Sunday afternoon I’m tucked in bed reflecting over the past few days. It’s been a mixture of a nightmare and a dream come true…worry that paralyzes and relief that trickles in and gives hope. All the while I’ve somehow felt the need to reach out to my friends old and new, online and down [...]

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Update Sunday 1:15

by Robin on March 15, 2009

Ellie had to have another IV put in last night. Her platelets were down and the Dr. decided to put her on meds for 3 days to fix that. Stephie called us with a few things to pick up for her and when I got there she wasn’t feeling well and wanted me to stay [...]

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Update on the girls 7:00 Sat.

by Robin on March 14, 2009

The Drs gave Johanna permission to take out Ellie’s IV!!!!! This means they are happy with her bloodsugar numbers and no more “plank ” & needle on her tiny arm!  Still has feeding tube but I know God is working so who knows maybe that will come out today too! Stephie’s doing really well so [...]

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Baby Ellie update 8:40am Friday

by Robin on March 13, 2009

Baby Ellie is currently on a continuous feed and yet her bloodsugar is still low. The neo Dr will be in this morning and we’ll see if more tests are needed. Stephie’s bloodwork came bk very good, platelets are now at 126. Steph is very concerned about Ellie. If you guys wouldn’t mind another prayer [...]

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Update on Stephie and Baby Elliot!

by Robin on March 12, 2009

I came home tonight. Stephie is doing better to the point that Jon wheeled her to the neonatal unit to see Ellie, Steph couldn’t hold her because the baby had just eaten and they wanted her very still to help keep the milk down. (Gitz, Stephie refuses to call her Ellie, she loves the name [...]

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Good Morning Update

by Robin on March 12, 2009

Last night was so much better for everyone. We knew Baby Ellie was being taken care of by our precious friend Johanna so Stephie felt so much more peaceful.  Steph slept deep for a long time. The Dr. came in at 3 smiling. He rubbed Stephie’s leg and said “your 12:00 blood-work is looking better.”  [...]

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I’m so sorry it’s been a haze of a day. (Haven’t slept in 43 hours so you can imagine my state of mind) Stephie has had a long day. I won’t go into all the details but I’ll say the latest blood work was much better.  Her platelets are still only 94  and other bloodwork is not [...]

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Update on Steph and Baby Girl 10:00am

by Robin on March 11, 2009

We had a Dr. this morning who was very honest. This was in a way a relief and in a way very sobering. He said Stephie is very sick but stable.  Said the risk of seizure is…well a definite risk.   Her blood work is holding and he says that’s okay with him, it’s better than [...]

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Update on Stephie 6:20am

by Robin on March 11, 2009

good morning sweet friends~ I’ve been here at the hospital all night. At about midnight Baby Girl had to go to the neonatal unit to get an IV. Her blood-sugar was down. Jon went to be with her for a little while and Stephie asked the nurse to come get me. Jon slept a little [...]

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